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By Kujda June 20, 2007 in Parents, Friends and Loved Ones of Celiacs
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Kujda Posted June 20, 2007 Kujda
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One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.
Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?
The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.
KRISTIN
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mamaloca2 Posted June 20, 2007 mamaloca2
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One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.
Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?
The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.
KRISTIN
Yes. this is just like my daughter when she gets gluten. Doctors frustrate the heck out of me! if you do a search for "sandy poop" or "grainy poop" it will take you right back to this forum where other parents talk about the same experience w/ their kids. Unfortuanately you have to do a lot of your own research because doctors don't understand this disease and don't take the time to find out. Good luck with everything.
Kujda Posted June 20, 2007 Kujda
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Yes. this is just like my daughter when she gets gluten. Doctors frustrate the heck out of me! if you do a search for "sandy poop" or "grainy poop" it will take you right back to this forum where other parents talk about the same experience w/ their kids. Unfortuanately you have to do a lot of your own research because doctors don't understand this disease and don't take the time to find out. Good luck with everything.
Thank you. This is the first time I've been able to talk to someone about this who understands. Just hearing from you that this has happened to your daughter makes me think I am right and doctors don't know everything. Thanks agin for your support! kristin
Momof2cuties Posted June 20, 2007 Momof2cuties
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Wow! I didn't realize that was normal for our little ones. Or at least part of the disease rather than normal. My daughter's poo has always been that way, too! I'm glad I'm not alone on that one.
Kujda Posted June 20, 2007 Kujda
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Wow! I didn't realize that was normal for our little ones. Or at least part of the disease rather than normal. My daughter's poo has always been that way, too! I'm glad I'm not alone on that one.
The sandy poops didn't even raise an eyebrow from my doc. Of course I knew from looking at them there was nothing normal about them. Since being gluten free for 3 months they are almost completely gone and it doesn't look like he ate a sand castle!
When she has a sandy poop is hard to wipe it all off? SOmetimes we had to put him in the tub because it was so much.
Glad not to be alone either!
Kristin
JennyC Posted June 20, 2007 JennyC
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My son's poop was always sandy before going gluten free as well. Thankfully it's gone now. When he gets glutened he has the gross floaty loose stools. 
I don't think that's much better though.
Momof2cuties Posted June 20, 2007 Momof2cuties
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The sandy poops didn't even raise an eyebrow from my doc. Of course I knew from looking at them there was nothing normal about them. Since being gluten free for 3 months they are almost completely gone and it doesn't look like he ate a sand castle!When she has a sandy poop is hard to wipe it all off? SOmetimes we had to put him in the tub because it was so much.
Glad not to be alone either!
Kristin
Yes! I felt like I'd go through about a dozen wipes sometimes. The poor child was so tortured by the painful diaper changes that she won't go anywhere near her changing table. We have to change her on the floor. Poor kid!
But, since being gluten-free her poos are much better. No more sandy appearnace, but they are still a little pale in color. We'll see how it goes.
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marlene57 Posted June 20, 2007 marlene57
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Hi,
Just thought you'd like to know....
I've had "sandy" stools for quite some time now. Since being gluten-free, it only happens when I get glutened.
I notice it when I wipe myself. It is terribly abrasive and makes me raw down there. A cool wipe helps make it feel better. Just hold the wipe on the sore area and your baby will feel better.
Marlene57
- 3 years later...
mamaofmany Posted October 13, 2010 mamaofmany
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Oh my goodness I am beyond words that your doctor said that! I have a 2 and a half year old little boy that is having the same kind of poops. Very sandy, grainy like usually brown and tan in color. He has had the mucous kind and those look disgusting but mostly it's the sandy kind. At the moment he has a horrible raw butt the same description you gave. I would probably look at a doctor if they had told me my child done that to himself and said "Are you kidding me! Can you come up with something better with that!" Doctors are so ridiculous sometimes. He has an appointment sit up to see his pediatrician on the 2nd of November. I want him tested for Celiac. I started yesterday evening stripping his diet of all gluten. And already his poop has changed to semi normal and he's pooping less. He usually has a good bit of 4 to 5 or more sandy poops a day. I know it has been several years since you posted this but whatever come about the problem. Was it a gluten issue causing it?
One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.
Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?
The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.
KRISTIN
celiac-mommy Posted October 13, 2010 celiac-mommy
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Was it a gluten issue causing it?
I know in our case it was gluten. Horrible acid-type rashes around the anus and poo that looks like he's been eating fistfulls of sand.
- 2 months later...
beebs Posted December 18, 2010 beebs
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I know in our case it was gluten. Horrible acid-type rashes around the anus and poo that looks like he's been eating fistfulls of sand.
I know this thread is old. But I read it and I just want to cry. I have been fighting the medical profession for exactly a year trying to get them to realise =I guess -that my son is likely celiac. I am almost sure of it - about 90%. His stools changed this time last year - and by far the most common one is that sandy looking one. I try describing it to our Paed GI and he just doesn't understand what I am trying to say. Because it isn't the "classic" celiac poo. He doesn't think he is. We are talking about a 4 year old - but he was 3 when he became so severely aneimic for no apparent reason that he developed a heart murmur. God I hate how this disease is so hard to diagnose - yes so easy to treat.
Boohoooo. My other son is about to have an endo and the paed GI is pretty sure about him being Celiac cause he has all the "classic symptoms", he had a cystic fibrosis scare last week - I just want a diag for my kids so we can move on and they can get healthy.
kareng Posted December 18, 2010 kareng
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I know this thread is old. But I read it and I just want to cry. I have been fighting the medical profession for exactly a year trying to get them to realise =I guess -that my son is likely celiac. I am almost sure of it - about 90%. His stools changed this time last year - and by far the most common one is that sandy looking one. I try describing it to our Paed GI and he just doesn't understand what I am trying to say. Because it isn't the "classic" celiac poo. He doesn't think he is. We are talking about a 4 year old - but he was 3 when he became so severely aneimic for no apparent reason that he developed a heart murmur. God I hate how this disease is so hard to diagnose - yes so easy to treat.
Boohoooo. My other son is about to have an endo and the paed GI is pretty sure about him being Celiac cause he has all the "classic symptoms", he had a cystic fibrosis scare last week - I just want a diag for my kids so we can move on and they can get healthy.
If your GI is sure the other one has celiac disease, he must consider that all your children have it. It is genetic. I have it and my kids have been tested and will be blood tested every 2 years (that was the recomendation I saw).
salexander421 Posted December 19, 2010 salexander421
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My girls both get the grainy/sandy poo that is so hard to wipe off. Does anyone know what causes this? Does it have to do with malabsorption??
beebs Posted December 19, 2010 beebs
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If your GI is sure the other one has celiac disease, he must consider that all your children have it. It is genetic. I have it and my kids have been tested and will be blood tested every 2 years (that was the recomendation I saw).
Oh yeah - he is likely going to have an endo too eventually, its just that for some reason, this paed GI doesn't think he has it. He doesn't say deffo no - just that he doesn't think so. Whereas with my younger one he took one look and listened to the symptoms and said he thought it was very likely after the first time seeing him. Far cry from the full year it has taken anyone to take my eldest son seriously. This guy is one of the top celiac Drs where I am - so I am surprised he doens't think my eldest has it.
- 1 year later...
KristenBogun Posted May 11, 2012 KristenBogun
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Thank you for these posts! My 2 yr old daughter seems to show signs of celiac. I want to say she's constipated, but it's more or different than that. She has exactly this, sandy poops. It is so hard to clean off and painful for her because it's abrasive. I have be so gentle and use cold, wet paper towels to clean it. I'm glad I'll be able to explain this symptom better to my pediatrician when I go visit for her 2 yr check up next week.
I'm going to request the tests for her and I should probably get them too - have different symptoms myself. Even we test negative, I'm still trying out gluten free.
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- Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
By knitty kitty · Posted 12 hours ago
@Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe and nontoxic. Vitamin D level should be above 70 nmol/L. Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L. Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer. We need more thiamine if we eat a diet high in simple carbohydrates. For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy. If there's insufficient thiamine the carbs get stored as fat. Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease. This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease. Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts. Adding a B Complex and additional thiamine improves health for Celiacs. Thiamine is safe and nontoxic even in high doses. Thiamine helps the mitochondria in cells to function. Thiamine interacts with each of the other B vitamins. They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/ - Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
By Jane02 · Posted 13 hours ago
Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten. My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity. Thanks again! - Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
By knitty kitty · Posted 13 hours ago
Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy. Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil. Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label. I have a crustacean/shellfish/fish allergy. I like Life Extension Bioactive Complete B Complex. I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D. Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta. It's rare to have a single vitamin deficiency. The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests. These are subclinical deficiencies within organs and tissues. Blood is a transportation system. The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart. If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician? - Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
By Scott Adams · Posted 16 hours ago
I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. - Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
By trents · Posted 16 hours ago
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Desperately need a vitamin D supplement. I've reacted to most brands I've tried. 
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Accept Cookies Reject CookiesTag » What Causes Sandy Poop In Toddlers
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